Tag Archives: new mom with cancer

All Clear

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Happy Day! All clear cancer screening!

The feeling of walking into my oncologist’s office, sitting and waiting for results so far has not changed for me. It is hard, plain and simple. I often wonder if the feeling will ever change.

When I was waiting today, 01/14/2014, I was looking around the room with a different perspective - that of a survivor. It had me thinking about the fact that I always preach absolute positivity through your cancer journey. The truth is, sitting back and really thinking about it, I don’t know if I have expressed to my readers that it doesn’t always come natural to be positive during cancer. It is a fight to stay positive – just as fighting cancer is. It is not always easy, nothing is, but one thing I feel to be true is: positive thoughts equals positive results. Positive results look different to everyone. Your positive outcome may be an all clear, another persons may be fighting through a recurrence, and so on.  This is true in survivorship as well. Cancer doesn’t end when treatment ends. In my opinion, once you’ve had cancer you need to have a life long dedication to being a survivor, being healthy, being dedicated to your check ups, taking your meds, exercising, eating right, keeping stress levels low and maintaining a positive attitude.

Today was my 18 month check up, which is a milestone for my cancer - ovarian dysgerminoma. At this point 4 out of 5 recurrences happen twelve to eighteen months post-chemo. I am so, so, so happy to say that I am cancer free! I have been dedicated. I have been positive. And I have fought to stay healthy. It is so important to always fight. I have been so blessed to be in contact with floods of wonderful fighters and to all of you I say, it is an honor and privilege to be along with you on your journey. Fight to stay healthy and fight to stay positive in all areas of life. FIGHT, FIGHT, FIGHT!

Lung Leavin’ Day

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Lung Leavin' Day

I always like to share inspiring stories of survivors and stories of positivity and hope. This story fits all the above. A wonderful husband of an amazing fighter reached out to me and shared his wife’s story and I would like to share it with you. Their blog is an awesome concept. If you have time please check out their site: http://www.mesothelioma.com/heather/lungleavinday/. Given 15 months to live, she is still fighting on 8 years later!! YOU GO GIRL!!!!!! KEEP ON ROCKIN’!!!

Here’s a bit about Heather:

Eight years ago, after her only child was born, Heather was diagnosed with mesothelioma – a rare cancer caused only by asbestos exposure. Her chronic illness taught her and her family the importance of acknowledging and overcoming their fears, something that prevent us all from living life to the fullest. This February 2nd marks the 8th anniversary of Heather’s life saving surgery, which involved a risky procedure requiring the removal of her left lung. It is a very special day to Heather and her family and is considered one of the memorable days of her husband Cameron’s life! They’ve coined this day as LungLeavin’ Day.

The purpose of LungLeavin’ Day is to encourage and empower others battling their own illnesses and life challenges to face their fears! On this day we celebrate for those who are no longer with us, for those who continue to fight, for those who are going through a tough time in their life, and most importantly, we celebrate life! Each year, friends and family gather at our house around a bonfire where we write our fears on a plate and smash them into the fire to represent conquering our fears.

This year, we are asking bloggers to take part in LungLeavin’ Day! We’ve created an interactive page that tells the full story of this special day, which can be found here: http://www.mesothelioma.com/heather/lungleavinday/

Here is a recent interview Heather did about Lung Leavin’ Day: http://www.mesothelioma.com/blog/authors/staff/lungleavin-day-2014-our-interview-with-heather-von-st-james.htm.

Tell Me What it Was Like to be Told You Have Cancer

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Around the time of Gracie’s first birthday Ryan started making a film for the party including interviews of all her close family members. I have to say, thinking about my pending interview was very traumatic. I was the last person to do my interview because I kept putting it off. I knew my husband and I knew he was going to ask me what it was like being told I had cancer just after having Grace. I don’t think you can ever truly speak about what it is like being told you have cancer as a brand new mom. Mainly because it is an emotion that can’t be conveyed in words due to it being so powerful. Also it is SO hard to focus after the fact on that particular moment when you were told. All other things occurring after that news begin to cloud your judgment on what your thoughts were. Read more

Welcome to Holland- Emily Perl Kinsley

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A very dear friend of mine circulated this essay while I was sick and she was facing the reality of a second child diagnosed with CF. It was SO impactful and something I think everyone should read. It doesn’t just have to pertain to having a kid with disabilities.

Life isn’t always as planned but takes you in amazingly wonderful directions if you are open to looking for the good. I truly believe the way to face tough challenges is head on with an open heart and open mind. I will talk about my “Italy” after the essay. Read more

First Ever Marathon Post Chemo

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It’s the night before the Sunburst marathon and I just picked up my packet! This is going to be AWESOME!! All of my tooth and nail fighting to return to the healthy person I used to be will be tested tomorrow. It is unbelievable I finished chemotherapy one year ago today.

I run to regain strength.

I run to give strength to others to know you can recover after cancer and be STRONGER than ever if you are willing to fight for it.

I run to raise money for cancer research.

I run to show my little girl mommy is okay.

I run to inspire anyone who thinks they can’t do something. I had a baby, major tumor removal surgery, a pulmonary embolism, and aggressive chemotherapy last year. If I can do it anyone can! Never give up! Never, ever, ever give up.

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Congrats on the Baby! ps: YOU HAVE CANCER. Balancing Cancer and a Newborn

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post surgery

All was perfect in my world at 10:45pm, 02/03/12.  You see, because that marked the birth of our first baby – Grace. Until you have a baby I honestly believe you don’t really understand life the way a parent does. I was immediately blown away with my emotions around this little bundle of joy. She was so quiet, peaceful, and naïve to all the joys and heartache of the world. The enormous feeling of responsibility to protect this child and start her off on the right foot, was with me right away. Little did I know, my power and ability to protect my baby Grace was going to be so quickly and so mercilessly taken away from me…or so I thought.

I will NEVER, NEVER forget the extreme fatigue I felt when returning home from the hospital with Grace. I will NEVER, NEVER forget how ill I was in the middle of the night – the night before going to the emergency room. I felt so helpless. I was sitting on the bathroom floor, nursing Grace, balling my eyes out, feverishly on fire, trying to clean up my mess from getting sick and thinking- I CAN’T DO THIS!! I am not a “can’t” person. My mom and husband can attest to this. I always astound them with the things I say I am going to do and actually accomplish but this felt hopeless to me. I had never had that feeling before.

Everyone kept telling me that being tired was normal. I knew this was not anywhere close to a normal-new-mom-tired. The fatigue came on in October 2011. I remember trying to make it to work an hour away and it took me sometimes up to three hours because I had to stop and sleep several times just to make it. Many nights would pass at the end of my pregnancy with lifting my head long enough to literally scoop the dinner Ryan made me into my mouth and then, as if I were as helpless as Sleeping Beauty, crashing back down to the pillow in complete surrender. I kept thinking man, I hope this goes away with birth. How can I ever take care of a newborn when I can’t even take care of myself? Birth came, my body blew up even more like a balloon, my fatigue got worse, and I felt like a crazy person the first two weeks trying to take care of Grace.  Soon after a cascade of events featured in Something was Wrong led me to being without Grace for the first time.

The night before my surgery Grace was not allowed to stay with me.  My mind kept racing in this endless sad loop of my first night in the hospital:

  • Where’s Grace?

Safe with my mom and Ryan’s parents.

  • How’s she eating? I’m nursing her and don’t have any reserves built up yet.

Formula and a bottle. AHHHHHHHH! More on this in another post.

  • Are people letting the kids hold her?  They’re only 5 and 3 and I don’t feel comfortable about it yet.

Yes. Dammit! That was my one request going into surgery- please don’t let the kids hold her. I felt very betrayed as I was helpless and it was my only request.

  • Is everyone washing their hands? She is being dragged in and out of doctor’s offices and a hospital. Is she going to get sick?

Everyone was hand washing to the point of their hands bleeding. Yikes. Gracie never got sick though! YAY!

  • Grace needs her mom’s heartbeat to sooth her. Is this messing up a critical mother-daughter bonding time? Will there always be a disconnect because of this?

In retrospect, it was one night without her mommy and she was and still is okay. Grace was with me everyday of my ten day hospital stay except one. Most of the time she was under my arm and bonding with me. I think it is me that initially felt like I missed out. I don’t remember those days. I was very drugged and my only memory of them is in pictures that are pretty painful to look at. I say they are painful but at the same time it is pretty damn cool that little Gracie, three weeks old, was as quiet as a mouse for nine days so she could be by her mommy. Pretty incredible in my opinion. My first real memories coming out of my drugged state were so bizarre. Ryan was wheeling me around the hospital and I had Gracie in my lap. People kept congratulating me on the birth of my baby. It was a really odd feeling because that was not why I was there and at that point I knew the result of my surgery and it was cancer.

  • I am in the hospital being sent pictures of my baby. I AM SUPPOSED TO BE SENDING THE PICTURES.

It was so sweet that I was getting pictures while Grace wasn’t with me but it was very hard for me. I didn’t know what time was going to bring. I didn’t know if I was going to make it out of surgery okay. I didn’t know if she was going to have her mommy and if I would be going out looking at a picture.

The balancing act was about to begin. A few days into my hospital stay the doctor came in and gave me the results of my surgery. All my mind heard was you can no longer nurse then it reverted to the thought, Congrats on the baby! ps: YOU HAVE CANCER. All of the above racing thoughts switched off and I went into some sort of bizarre survival mode. I started making one of my silly lists in my mind again.

  1. Number one priority…ME. WHAT? WHAT!? I have never made myself the priority. Now I have a child and my first thought is, I have to be the priority! Yes, harsh reality but – yes! If I don’t make myself and my health number one Grace and Ryan will never get the opportunity to be number one priority in my life because I won’t make it through this and be healthy for them.
  2. Maintain a positive attitude and happiness. It is critical to a child’s development to be surrounded with positivity and happiness. I want a happy child. Must keep Grace happy. Must teach her strength and grace through the hard times. I want her to look back at pictures of this time and know that she made it grand and gave me incredible strength to conquer this hurdle. I want it imprinted in her mind that you don’t have to let illness consume you. You can make a choice to have your reality play out in a positive light even though it may initially seem devastating.
  3. Okay, I can’t nurse Grace anymore. Must find the best formula on the market and deal with it.
  4. I am going to be in chemotherapy 8-5, M-F for 3-4 months. Make sure Grace can be with me.
  5. Keep moving so I have energy for Grace.
  6. Be with Grace as much as I possibly can. Don’t let others take over unless needed. This is going to be hard enough, I don’t want to add the feeling of not being able to raise my child.
  7. Expose, experience, and teach Grace as much as possible. Make awesome memories with her. Take a lot of pictures. Take a lot of pictures. Take a LOT of pictures.
  8. Regain my sense of power to protect my little one, raise her, and nurture her NOW. Nothing is being taken away from me. I am being given an enormous gift in disguise.

Surgery, chemotherapy, and a newborn were all very challenging but we had a lot of help and support (to be written about at a later time) that made it not so bad. Looking back, this has made us a very, very strong family. I feel like my cancer was a success and a blessing. I concentrated so hard on my list and it worked. I plunged forward and have my health and the most awesome little girl I could have ever asked for.

Reality changed!

Congrats on the baby! ps: YOU HAVE CANCER is now……

Congrats on the baby!! ps: SHE IS SO, SO COOL!!!!

Congrats on beating cancer!! ps: YOU WERE SO STRONG, POSITIVE, AND DID A DAMN GOOD JOB WITH YOUR KID!!

Everyone has the power to change their reality. Whether you are able to get out and muster up the energy to be active or you are bound to bed. Make your list. Empower yourself with the ability to change your reality. There are many things you can do from a hospital bed or a chemo chair. There are many ways to find happiness and a positive light even in seemingly dark situations. Empowering yourself to change your reality may just shock the hell out of you. You will see things in yourself and others you never thought was possible. I think this applies to everything in life.

Here are some photos from our hospital stay. The last one is celebrating Grace’s 4 week birthday. Every week we celebrated on the Friday she was born at 10:45pm. I would make her balloons out of straws and Kleenex :). It’s all I had access to. :)

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Who has her pre-cancer hair back?! This girl!!

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Just about a year out from losing my hair and I went to the salon to see the always wonderful Kristin today and…

Drum roll please…

I HAVE MY PRE-CANCER haircut back! Pretty close anyway. :) I actually enjoyed my lack of hair but am happy to have my old haircut back. Now back to reality! I’m headed to the neurologist to have my follow up nerve conduction study tests to see if the combined electro-chemical block therapy worked on my neuropathy. It certainly feels like it did but I’m curious what the testing will show.

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A Different Kind of Mommy – Mother’s Day

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Mother's Day 2013

Today is Mother’s Day. As I reflect on this past year of being a mom, I realize being diagnosed with cancer makes you a different kind of mom. My prognosis was and still is great but hearing you have cancer three weeks post-delivery of your first baby does something to you. It is like a switch turns on and you feel the need to experience and expose your little one to as much as possible all the while absorbing as much as possible – immediately.

Last year on Mother’s Day I didn’t feel so good. I was in my third round of BEP chemotherapy and it was starting to catch up with me. Up until that point I had been feeling pretty good in general. Mother’s Day was so important to me, after all it was my very first Mother’s Day and a lot had happened since having Grace that in some ways it made me feel like I was cheated and in other ways made me feel like super mom. For my first Mother’s Day, we went to brunch, which I was worried about making it through because I was having some pretty bad digestive issues that set in with round 3. I did pretty good. Good enough to make it to a picnic Ryan planned later in the day. In general the day was a success and I made it through.

Here it is Mother’s Day again and I feel like a completely different person. I actually feel better than ever. If you would have asked me last year at this time if I thought I would be saying that now I probably would have responded with a bit of doubt that I would be feeling better than ever. All in all I am very thankful for my cancer and it’s timing, it made me a different kind of mom.

How has cancer made me a different kind of mom than I thought I would be?

  • Slowing down- absorbing life: Cancer slowed me down and made me realize that I wasn’t absorbing the great moments in life like I wanted to. I really focus on absorbing every moment with Grace which I am so thankful for. Everyone says “doesn’t it fly by?”. Yeah, your baby growing up does fly by but when you are present, in the moment and absorbing those precious minutes, hours, and days of time, you realize how amazing the process is and it seems to slow things down a bit.
  • Remembering special moments- even in a fog: With chemo came a bit of “chemo fog”. It was important to me to remember Gracie’s special moments and all the little things that make me so proud to be her mom every day. So when my memory began to slip I started keeping a daily calendar of little things she did or new milestones. I would read them over and over again at the end of the week and it would make me remember and smile. Even though I am out of my chemo fog this is still something I do every day and probably will continue to do until she is off to college. It is so cool to look back at the day to day.
  • The Jolt: Time is precious: Cancer jolted me and made me realize that time is precious. I honestly spent the last year trying to do as much as possible with Grace all while taking a lot of pictures along the way. Creating memories for her through pictures. She is pretty young to remember this time when she is older but if anything ever did happen to me she will have an awesome set of pictures to look back on. Oh how cool and amazing this year has been with her. We have taken many, many trips large and small, more than most kids do before they leave for college. Friends laugh and ask “How do you do that with a baby?” “How do you do that with a baby being sick?”. I just do. I have to.
  • A different kind of role model: I believe one of the most important parts of motherhood is leading by example. You have an awesome ability to form and mold a child into anything. You have an attitude, your child will have an attitude. You roll your eyes, your child will roll their eyes. You treat others poorly, so will your child. All simple things, really. I am so focused on leading by example for Grace, I have been since the beginning. What I didn’t know is that I was going to have a less simple example to set. I was going to immediately have to show her strength, grace and joyfulness through cancer. I could have never imagined this would be my first example of being a role model to her.
  • Making up for lost time: I didn’t really miss out on much with Grace. It just didn’t start out so easy and at times I long for those precious alone, one-on-one mommy times with her that I didn’t get at the beginning of her life. Trying to make up for this has been a lot of fun. We have gone on a couple trips together across the country just the two of us in the car, bonding and giggling. She is my very fun little travel buddy. Lost time? What lost time?

I love being a mom. It is so much more spectacular than I could have ever imagined. This Mother’s Day, today I am full of energy- like a little kid! I ran a race, my first race since Grace and cancer yesterday and it went really well. Today we are off to brunch again and I am not worrying about keeping my food down. I have a wonderful, happy baby and I feel like an awesome mom. In fact, I feel like super mom to have made it through all of this with a new baby. What a difference a year makes. There is light on the other side of cancer.

Mother’s Day 2013

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Mother’s Day 2012

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